KISTproject

For families at Children’s Hospice Association Scotland (CHAS), where vital respite care is provided for children with life-limiting conditions, days are busy and prone to change; information sharing is essential. This can be difficult when a child visits CHAS alone, particularly if their condition prevents them from communicating their wants and needs. KISTproject has co-designed, with families and staff at CHAS, a set of customizable objects that link to and support a co-developed bespoke social network; ‘I am’. This communication platform will enable a visiting child to quickly convey who they are, what they need and how they like to spend their time, connecting the people and places central to the child’s world. Children and families can share information and memories as they are made, interact with other families and services, and care providers are afforded deeper insight into a child’s life allowing for an overall greater quality of care.